SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.
Remaining true to its founding purpose, SOFT UK is an organisation run by families for other families. We provide up-to-date information and non-judgemental support.
We provide support to families at all stages of the trisomy journey; during pregnancy, when caring for a child, through bereavement and beyond.
We also provide information and support to professionals working with families affected by Trisomy.